Monday, 20 April 2015

Multiple Sclerosis

I would be honoured to stand up for people with MS. The last government has been a disaster for disabled people, Greens would reverse that. 

If elected I would give MS a voice, meet up with local MS groups and do my best to make sure they are treated fairly. Greens would invest more than any of the bigger parties in the NHS, so there would be more resources. And meet with local authorities to do my best with social care for those with MS or any disability. 

Regards Adrian Windisch

Mr Adrian Windisch 

Dear Mr Windisch,

My name is ...,, and I live in Lower Earley. 

If you are elected in May, I need you to stand up for people with MS. 

Over 100,000 people in the UK live with MS, a neurological condition that affects roughly three times as many women as men. It’s essential that they have timely access to the right treatment, care and support, no matter where they live. 

Unfortunately, this is not happening. Awareness of the condition is abysmally low, and for people with MS, accessing the right support can be a daily battle.

75% of British adults admit they don’t feel they know enough about MS. In Europe, just Poland and Romania have lower access to disease modifying treatments for MS than the UK. Between 2008 and 2013, over 90,000 disabled people lost access to care and support. More than a third of people with MS have been incorrectly placed in the Work Related Activity Group (WRAG) for Employment and Support Allowance (ESA). People in this group receive less money, the threat of sanctions and many have this benefit removed after a year.

If you are elected, I need you to:

Give MS a voice

Establish a relationship with your local MS community, and make sure MS is recognised and understood by health and social care decision makers in your area. Challenge and change the way society talks about welfare and disability.
Ensure people with MS can access the right treatment at the right time

Call on health and care decision makers in your area to invest in MS specialists such as MS nurses, and make sure every person with MS has a dedicated care co-ordinator. Join the fight to ensure all licensed MS treatments should be accessible and available on the NHS to all eligible people with MS.
Make sure assessments for disability benefits work for people with MS - THEY DON'T CURRENTLY GET CLOSE!

Work to ensure that assessments for disability benefits recognise the hidden symptoms of MS and how the condition can fluctuate over time. People with MS must not be unnecessarily reassessed for disability benefits.
Fight for people with MS to access the care they need when they need it

Work with local authorities in your constituency to ensure the social care needs of people affected by MS are fully met, and that if you are in England that the national government allocates sufficient investment in social care.

Thank you

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